Group and family fundraising

The Cameron Family Fund is fundraising for pioneering research into autosomal dominant optic atrophy (ADOA) to help Edward and Beth, who have been diagnosed with the condition.

Edward and Beth’s Mum, Kate, said: “We want to help in any way we can to fund research into autosomal dominant optic atrophy. With members of my family experiencing low vision, it feels very important to raise funds for, and awareness of, Fight for Sight’s brilliant and necessary work. Thank you for supporting a cause so close to our hearts and helping us to build a future all those with autosomal dominant optic atrophy can see, like Edward and Beth.”

Mark and Tina Roberts (pictured right, on a lab visit) - as well as the whole Roberts family - are raising money for their daughter Rose, who was diagnosed with Stargardt disease when she was seven years old.

On receiving Rose’s diagnosis, the family didn’t know anything about the condition or anyone who had it, until they were introduced to Fight for Sight and learnt about the research that Fight for Sight was funding.

Stargardt disease, or Stargardt macular dystrophy, is a genetic eye condition that causes progressive central sight loss. It is estimated to affect between one in 8,000 to 10,000 people in the UK, impacting the sharp, straight-ahead vision that we rely on for many activities – such as reading, recognising faces or watching TV. Currently there is no cure.

Support the Roberts family fund

The Tommy Salisbury Choroideremia Fund was set up by the Salisbury family to raise money for research into choroideremia – an eye condition that affects their son, Tommy.

To date, more than £714,000 has been raised by the Salisbury's, which has led to the world’s first clinical trial of gene therapy for choroideremia. Emma, Tommy's mum, has also been recognised for her charity work through the Prime Minister’s Points of Light scheme, marking outstanding individual volunteers across the country.

For information on forthcoming events organised by the family or how to get involved, please contact Emma on tommysalisburyfund@gmail.com

Support the Tommy Salisbury choroideremia fund

Read about Tommy's journey and his epic Marathon efforts here > 

Members of the Northamptonshire Supporter Group are longstanding and committed Fight for Sight fundraisers.

This dynamic group organise several wonderful events throughout the year including coffee mornings, lunches, charity dinners and auctions.

Over the past few years, this incredible team has raised more than £60,000 to help us to put change in sight for people living with vision impairment.

For information on forthcoming events in the area or how to get involved, please contact chair and treasurer of the Northamptonshire Committee, Rosemary Swallow on rosemaryswallow@hotmail.co.uk

The Warwickshire Fight for Sight Committee was set up in 1994 by Clive Stone, previous Fight for Sight chairman and trustee, and Debbie White, after they met on a golfing holiday.

Debbie has the rare genetic condition, usher syndrome II, which causes hearing impairment and progressive vision loss due to retinitis pigmentosa (RP). Though Debbie realises that there may not be a breakthrough in her lifetime to reverse her sight loss, she has been tirelessly fundraising for over 29 years and to date, she and the Committee have managed to raise £380,000 for Fight for Sight's pioneering eye research.

The group host very popular annual Warwickshire golf days, as well as sky dives, cycling challenges, gala dinners and night walks - to name but a few.

Willow was diagnosed with a unilateral congenital cataract when she was 20 months old.

Willow is now under a paediatric ophthalmologist and underwent a successful surgery at the end of May 2024 at Addenbrooke’s hospital in Cambridge. They removed her natural lens and replaced with an artificial one.

We've decided to set up a family fund with Fight for Sight charity to help raise funds and awareness for Congenital Cataracts. Before Willows diagnosis we had never even heard of cataracts in children. 

By setting up this fund we're hoping we can raise more awareness for parents to check their babies eyes regularly and recognise the early signs, like light sensitivity and when taking photos of their children looking to see if they have ‘red eye’ proving positive red reflex.

Two of our three beautiful daughters have been diagnosed with the genetic and degenerative condition, Stargardt disease, and as a result are loosing their central vision. They're both registered blind. Lucy was diagnosed when she was 12 years old and Chloe was 11 years old.

At present there is no cure, but Fight for Sight are leading the way with some promising research and trials and we are hopeful that one day there will be a treatment and/or cure for them and others just starting out on this journey.

This fundraiser is so close to our hearts and we hope to raise £10,000 for our Booker-Wilson’s Stargardt Family Fund.