Fundraising as a group

The Cameron Family Fund is fundraising for pioneering research into autosomal dominant optic atrophy (ADOA) to help Edward and Beth, who have been diagnosed with the condition.

Edward and Beth’s Mum, Kate, said: “We want to help in any way we can to fund research into autosomal dominant optic atrophy. With members of my family experiencing low vision, raising funds for and awareness of Fight for Sight’s brilliant and necessary work feels very important. Thank you for supporting a cause so close to our hearts and helping us to build a future all those with autosomal dominant optic atrophy can see, like Edward and Beth.”

Read Ed and Beth's story

More about the Salisbury Family Fund

Tommy's story: Running towards a brighter future

The Salisbury family set up the Tommy Salisbury Choroideremia Fund to raise money for research into choroideremia – an eye condition that affects their son, Tommy.

To date, more than £714,000 has been raised by the Salisbury's, which has led to the world’s first clinical trial of gene therapy for choroideremia. Emma, Tommy's mum, has also been recognised for her charity work through the Prime Minister’s Points of Light scheme, marking outstanding individual volunteers across the country.

• For information on forthcoming events organised by the family or how to get involved, please contact Emma on tommysalisburyfund@gmail.com

Support the Tommy Salisbury Choroideremia Fund

Fundraising hero: Emma's story

Mark and Tina Roberts and the whole Roberts family - are raising money for their daughter Rose, who was diagnosed with Stargardt disease when she was seven years old.

On receiving Rose’s diagnosis, the family didn’t know anything about the condition or anyone who had it until they were introduced to Fight for Sight and learnt about the research that Fight for Sight was funding.

Stargardt disease, or Stargardt macular dystrophy, is a genetic eye condition that causes progressive central sight loss. It is estimated to affect between one in 8,000 to 10,000 people in the UK, impacting the sharp, straight-ahead vision we rely on for many activities – such as reading, recognising faces or watching TV. Currently, there is no cure.

Support the Roberts Family Fund

The AK Community was set up by Fight for Sight supporter Ian West and others who have experienced or currently have the condition acanthamoeba keratitis.

This active group is made up of people who AK has impacted. Some of the fundraisers are still suffering from the effects of this sight-threatening parasitic infection, which is often associated with the use of contact lenses.

The money raised by The AK Community will help Fight for Sight fund research into AK prevention and effective treatments and diagnoses for this chronically painful condition. 

Donate to the AK Community

The Warwickshire Fight for Sight Committee was set up in 1994 by Clive Stone, previous Fight for Sight chairman and trustee, and Debbie White, after they met on a golfing holiday.

Debbie has the rare genetic condition, usher syndrome II, which causes hearing impairment and progressive vision loss due to retinitis pigmentosa (RP). Though Debbie realises that there may not be a breakthrough in her lifetime to reverse her sight loss, she has been tirelessly fundraising for over 30 years.

To date, she and the Committee have managed to raise £380,000 for Fight for Sight's pioneering eye research.

The group hosts very popular annual Warwickshire golf days, skydives, cycling challenges, gala dinners and night walks - to name a few.

The Singh family is raising money to fund research towards their boys' eye condition, Choroideremia. The year 2021 was a challenging year for the family; in the space of nine months, they learnt that both their boys have choroideremia, an eye condition which causes progressive vision loss and ultimately leads to blindness.

The dedicated parents want to raise funds for research that could help their boys before their vision is significantly affected. 

There is currently no cure for choroideremia, and research and clinical trials are taking place, but many are focused on adults rather than children.

They told us:

“Our eldest son is only nine years old and is already showing signs of vision loss and night blindness. Waiting until they are 18 for a potential clinical trial may be too late for them. My boys are still unaware that they have choroideremia. One day, I will have to tell them, and that will be the hardest day of my life; that day will be easier if I can tell them that there is treatment for them. A treatment or cure will only happen if we raise the funds.”

Donate Now

The Northamptonshire Supporter Group members are longstanding and committed Fight for Sight fundraisers.

This dynamic group organise several wonderful events throughout the year including coffee mornings, lunches, charity dinners and auctions.

Over the past few years, this incredible team has raised more than £60,000 to help us to put change in sight for people living with vision impairment.

For information on forthcoming events in the area or how to get involved, please contact chair and treasurer of the Northamptonshire Committee, Rosemary Swallow rosemaryswallow@hotmail.co.uk

Willow was diagnosed with a unilateral congenital cataract when she was 20 months old.

Willow is now under a paediatric ophthalmologist and underwent a successful surgery at the end of May 2024 at Addenbrooke’s Hospital in Cambridge. They removed her natural lens and replaced with an artificial one.

We've decided to set up a family fund with Fight for Sight charity to help raise funds and awareness for Congenital Cataracts. Before Willows diagnosis, we had never even heard of cataracts in children. 

By setting up this fund, we're hoping we can raise more awareness for parents to check their baby's eyes regularly and recognise the early signs, like light sensitivity and when taking photos of their children looking to see if they have ‘red eye’ proving positive red reflex.

Support Willow's Fund